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A group of us with all forms of Progressive MS (
progressive relapsing; secondary progressive, primary progressive
multiple sclerosis)from all over the world gathered together to form
this, our own Progressive MS community in 1998. All of the staff in our
forum are volunteers who all have progressive MS or who care for
someone with progressive MS.
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The reason we formed this community is because we had
become disillusioned with the majority of websites who seemed to cater
for people with relapsing remitting form of the disease, but little
understanding of progressive MS.
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We found that most of the "educational material" or
"information" on other sites is primarily for people with RRMS.
Therefore, here and in our forum all of the current research;
information articles; advice and support is exclusively about
progressive MS - it is gathered from all over the internet and located
in our community - saving you hours of "hunting and pecking" looking
for more than the standard one paragraph you will usually find.
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Our community as a variety of different folders,
including up to date research, medications, symptoms etc. We are also
very fortunate to have Dr. Ben Thrower - one of the leading specialists
in Multiple Sclerosis of all types and Dr Richard Shields - our
resident pharmacist specialist- answer questions from our group. We
have social workers and a psychologist consultant as well! We also have
some folders just for fun - jokes, poetry etc. We also have our own
chatroom with regularly scheduled chats
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If you are interested in joining our group, or wish to
know more about progressive ms, please use the "email link" to send a
note to Lyndy. Please also use the "Internet link" to travel to the
forum
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